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Our Supporters
Evie & Jack

Thank you for your Support!

SSADH Families

As a 'kitchen table' organization, we are grateful for your unwavering support, and your willingness to get involved by golfing, sponsoring, donating or volunteering.

Whether it is your time, talent or good old fashioned money – we could not have accomplished what we have with the SSADH Association without you.

Each year we continue to make strides and gather momentum in our efforts to minimize the affects of SSADH. To us, and all those who benefit from the important work of the SSADH Association, you are our heroes!

It’s hard to put into words the difference that you have made in the life of these kids and their families dealing with this rare disorder.  When your child is diagnosed with a rare disorder there is nothing more comforting then to hear that research is happening in the hope of finding a cure for that disorder. 

So, on behalf of the SSADH patients, families, researchers and Board of Directors, we thank you!


Brad, Carolyn, Jacob, Sam and Sarah Hoffman